As one of the largest providers of Huntington’s Disease care in the nation, we answer questions from caregivers and loved ones every day. Most commonly, people want to know about the available therapies, how to manage the most challenging symptoms, how to find support when you need it, and a clear understanding of who will lead and provide care for the best outcomes. Below we have a brief overview for you. If you have questions or want to know more, please reach out to us.
The following information is shared by the medical team to answer common questions about Advanced Care & Specialized Therapies at the Huntington’s Disease Center in Rhinebeck, NY, covering therapies, symptom management, and support for caregivers.
We offer three main types of therapy:
- Physical therapy
- Occupational therapy
- Speech therapy
Manage Symptoms
Our medical team provides support for managing movement symptoms like chorea. Our team includes doctors and neurologists who specialize in movement disorders and work collaboratively to provide the best care for your loved one.
We offer:
- Maintenance therapy to keep current abilities
- Restorative therapy to rebuild skills
- Special treatments, such as Electrical Stimulation and Diathermy, for pain relief.
We also provide therapy for speech difficulties and swallowing problems. We understand how difficult and challenging these symptoms can be. With assisted care, your loved one can live more comfortably with the support they need.
For symptoms related to depression and aggressive, we take a team approach by:
- Holding meetings with staff, families, doctors, and psychiatrists
- Identifying the causes of symptoms to improve quality of life
- Suggesting activities to help engage and stimulate
- Recommending helpful medications when needed
- Providing psychology and social work services
Prevent Falls
Our Huntington’s Disease Center was built with safety as a priority. Our facility has special padding on floors throughout our Neurodegenerative Unit, with optional padding in resident rooms and bathrooms. While we understand that falls happen, we work hard toward prevention and the highest level of care at all times.
When is additional care needed?
The need for additional care depends on how far the disease has progressed. A caregiver is recommended when someone can no longer safely complete everyday activities on their own. It can be difficult to determine when help is needed. Use this guide on when to consider a nursing home for Huntington’s Disease to help you find answers.
Support for Families & Caregivers
Several resources are available for the family and caregivers to help you on your journey:
- HDSA Chapters provide valuable information and connections
- Support groups for both patients and caregivers are available in the area
- We assist with disability applications and provide connections to specialists and clinics
- Every month, Ferncliff‘s offers caregiver support groups and recreation activities
Who is on your loved one’s team?
The most important and personal question is about who is working directly with your loved one. Our complete care team includes:
- Doctors and neurologists
- Nurses and nursing assistants
- Social workers
- Recreation specialists
- Dietitians
- Physical, occupational, and speech therapists
Each team member plays a vital role in delivering quality care.
Contact Us for More Information
If your family is considering a facility for Huntington’s Disease care services, please contact us here for more information. We’re here to support you and your loved one every step of the way.